Wednesday, July 15, 2009

Vision Problems after Brain Radiation

Eye problems can be one of the symptoms and result of brain tumors. DD17 has had some double vision since her surgery and treatment, but it worsened about two years ago. She now has prisms in her glasses, which so far have helped. We've dodged eye surgery for now.

She also developed a weird and rare side effect from the brain radiation (the neuro-opthomologist was very excited when he discovered it two years ago and even took photos for a presentation at a medical conference.) Ocular neuromyotonia (ONM) causes one eye to get "stuck" looking to the side, while the other eye returns to center. DD17 can "unstick" her eye OK so far, but it does unnerve her and she tries to avoid doing anything to cause it to happen in the first place.

It's painful to see the physical impairments caused by brain tumors. Most of DD17's are not really noticeable unless you are looking for them, and DD17 is certainly "luckier" than most (you just have to spend some time in a hospital to realize just how lucky you are). But it still hurts when you remember giving birth to a perfect little baby and wonder why your child has to be the one to get cancer and deal with the aftermath.

Tomorrow we have a hospital visit to see the neuro-opthomologist. It all comes crashing back every time we go back into the hospital, even though our visits are farther and farther apart.

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